Life all comes down to a few moments. This is one of them. *Pivotal Legislative Changes for Dyslexia

Recently, IN SB 217, which concerns schools’ response to dyslexia, passed through the Indiana Senate and House. This bill takes a huge step forward in addressing a problem that has the potential of negatively impacting lives of our students throughout their school years and beyond.

The good news for Indiana school corporations and charters is that the tenets of the bill are to be met no later than the 2019-2020 school year; scarcely more than a year from now. Of course, this time will not be spent idly, but rather in preparation for the ensuing changes in instruction, school personnel, and attitudes. Following is a skeletal outline of what will be required of schools in IN SB 217.  
  • At CCC meetings, on IEPs, and on your school’s website, start talking about dyslexia. Everyone should know by now that “if we just ignore it, it will go away” is a negligent fallacy. Talk to other teachers about what they are seeing in the classroom. Get familiar with dyslexia, get comfortable talking about it.
  • Use the IDOE-approved system of supports to address the reading needs of students that present characteristics of dyslexia. Be careful not to spend too long in a tier if it’s not working for the student. Time spent ineffectively addressing dyslexia is time wasted, and studies have shown that a poor reader in 1st grade has a 90% chance of always being a poor reader. Interventions that are timely and effective increase opportunities for academic and life-long success.
  • Obtain parental consent before screening. This should be no problem. When I speak with parents about this, they are hungry for solutions; they want honest discussion between teachers and their families, they want their child screened, they want outcome driven interventions, yesterday. Last year. Two grades ago.
  • Dyslexia interventions may include certain types of instruction. So vague, but so easy. The research is in and we know what works here: instruction that is Explicit, Systematic, Multisensory and Phonetic. If your instruction curriculum does not include these, let us help you find one that does.
  • By July 1, 2019, each school corporation and charter must employ at least one authorized reading specialist trained in dyslexia. Depending on school population more than one may be necessary. Begin making the decision on who will be designated as soon as possible, and find a certification program.
  • IDOE will provide professional awareness information on dyslexia to each teacher in each school corporation and will develop and update an Indiana dyslexia resource guide. Lean into the support they will provide.
So, there it is. If you regard IN SB 217 as an overwhelming addition of copious amounts of work, that is completely understandable. But allow this outlook to exist only for a couple of days. We all know how fast a year passes. This is so much to pull together, but you can do it! Your students need you to be successful, so they can be successful.

The ICAM will support schools as they serve students who have a current IEP in several ways. We will provide a membership for them to receive human voice recorded audio books, some that are accompanied by text: textbooks, children’s books, literature and novels. Also, we will provide NIMAS files, the digital format of their textbooks to use with text-to-speech software, and ePubs. These specialized formats are pathways to adding a multisensory element to your instruction. It’s not the whole multisensory component, which uses all learning pathways at once—visual, auditory, kinesthetic, tactile-- but should be regarded as a substantial piece.

Also, we have a growing collection of dyslexia-related books and other resources in the PATINS Lending Library; you may review titles in ICAM Dyslexia Book Resources. There are a few articles in Document Resources you may find helpful, and on the Dyslexia Resources page there are webinars, websites, a dyslexia screener. We will be adding to and updating these pages as we continue our research.

PATINS/ICAM Specialists are happy to come to your school to present real classroom solutions that can be immediately implemented, even customize a presentation to address specific needs of your school or corporation as you adapt to the changes IN SB 217 requires.

We are here for you. And for the starfish.

Thanks so much!

* "Wall Street"
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AT Team Development- Worth the time!

We just wrapped up ATIA 2018 in Orlando. There were so many wonderful sessions and so many great folks to network with. My focus was AT Team Building this year. It strikes me that the issues are the same as always and the individuals faced with solving the issues are the same groups of people. The difference in all these years is that our general knowledge has evolved as has the mass, open accessibility to tools. Maybe it is helpful that our funding is increasingly blended, too, making it more obvious that these kids are all of ours, so more folks are naturally involved in the brainstorming.

Stakeholders are all talking classroom accessibility rather than pulling a student from natural instruction to provide access on a tool so special or expensive it has to be stored in a special "AT room" with security akin to Fort Knox. Talk about leveling the playing field! The Cloud; Access to the Same Curriculum; Getting materials in Real Time; Accountability; Showing what someone Knows; Expecting Achievement; and working with General Educators have all facilitated this growth in Access and Communication. If that is not team building, then I have missed something.  

Bridge builders working together on structure

We still need framework, structure, support, training, modeling and followup as we develop this process. We need to encourage individuals with expertise to blossom, find their niche and shore up the structure for staff and student. The knight in shining armor coming in to save the day never really did work because you are still left with the issues, once the knight leaves.  

Let's work together to Level the Playing field for staff working to find solutions and support each other as we support students. In the immortal words of my daughter, "It's a marathon, not a sprint." Let's pace ourselves and dig our heels in for a lot of fun as we lope along! It is a familiar path and now we can slow down enough to welcome friends. With the tools readily available, progress can be seen fairly immediately, so this marathon can be a satisfying journey.

The PATINS website has some suggested structure to get you started. Go to the Julie Kuhn Webpage and look for AT Team Development. Also, I periodically host webinars on this topic and you can always contact me to get started on your own problem-solving and action plan!

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Death By Paperwork

"Death By Paperwork" in a creepy font and a blood splatter
First: I made it out alive. You will too.

This year I messed something up in my back, and by April it was hard to sit for more than twenty minutes at a time. Every drive, conference or meeting I was engaged for a bit and then the rest of the day was spent imitating your favorite wiggly child, trying to ease the pain. I felt terrible.

Sometimes it got better, and then it got worse. I complained. I ignored it. I tried what I knew to fix it, I asked friends for ideas. Nothing really worked.

I had enough and went to a specialist, definitely not something I was looking forward to. I hate going to the doctor. But within a few sessions, my life had changed.

It was like getting glasses in the correct prescription or wearing good shoes after years of wearing Old Navy flip flops. I didn’t know how bad it was until I experienced how my spine was meant to be.

About three years into my career I had another issue that was a major pain: paperwork.

Paperwork is like back pain. Everyone gets some, some people get more than they can handle. It comes when it’s least convenient and it will not go away if you ignore it. By the end of my third-year the IEPs, evaluations, and caseload documents piled up to my ears. It was affecting my ability to do my job and my family life. I felt terrible. If death by paperwork was a thing, it felt imminent.

I complained. I ignored it. I tried what I knew to fix it, I asked friends for ideas. Nothing really worked.

An administrator gently suggested I see some “specialists.” I did not want to admit that I was struggling to anyone, but after meeting with others who were amazing at keeping on top of it all, they gave me some ideas. They pointed out some of my mistakes, the weight that was causing the paperwork pain, and they helped me develop my paperwork treatment plan.

In less than two months, I started to feel better. My files were in order and I felt in control. By the next year, I was rocking a weekly paperwork schedule and found tools to help me streamline and automate. I was spending even more time working with kids than I was before! It was career changing. I didn’t know how good it could be.

You, dear reader, might be dealing with some pain in your career. Maybe it’s paperwork or a student on your mind who you don’t know how to reach. Maybe it’s a new tool or expectation that’s pain in your neck, and doing your job effectively seems out of reach. Maybe you complained or ignored it. You tried what you knew to fix it, you asked friends for ideas. Nothing may have worked.

If it’s related to supporting student’s access to education, we’ve got a team of specialists here to help.

It might just change your life.


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Summer Musings, Student Thoughts


Summer. What a great time to store up some natural vitamin D, enjoy the outdoors, and clear our minds from the doldrums and cobwebs that some of us collect during the winter months and look for renewal for the upcoming school year.


At our house, we remodeled our kitchen and, that was an undertaking! It only took three times longer than anticipated but the end result is gorgeous. One does not realize how old something is until it is updated though to be sure, my daughter did try to advise me of this for a while. I took the opportunity afforded by dust, chaos, and disarray to purge the rest of the house. This made the mayhem worse. The saving grace for me was in knowing this messiness was temporary and actually, in my relative control. We have expanded some of the renewal to include new carpeting, which should be installed next week. So it is not smooth sailing yet. Then, of course our family get together is happening before the carpet comes in so it is not “perfect”. There is a lesson in there, too. Perfect is not necessary. 

As I gear up for the 2017-2018 school year, I cannot help but reflect on the daily lives of some of our students. This is not a statement of poverty, class, background or anything else. It is just life. The issue of clutter, chaos and stability crosses all the lines. So, how does this impact our students?   

On an individual level, consider how each of us is able to focus, find things, concentrate, think, create, remember or recall in an environment where we feel we have control, or where we feel we do not. A great example of this comes to mind with the topic of homework. How can homework get done in the midst of chaos? Let alone get done effectively. What does it take to set students up for success when it comes to homework completion? We have to look at individual needs on a universal level.

If we follow the UDL principles set by CAST and follow up work at the UDL Center we have an expectation to facilitate students ability to become expert learners. How can a child and young adult be resourceful and knowledgeable; strategic and goal-directed; purposeful and motivated amidst clutter, chaos, mayhem and limited choices? I think of students with complex disabilities.  Again, the issues cross all the demographic lines. Without a voice or a way to effectively communicate, an individual is dependent on the organizational style, timelines, thought processes of those around them. I do not see how this can promote the development of expert learners.

As an occupational therapist, we look at the whole person, not just the physical aspects of disability. When I see homework not getting completed, there are usually a number of reasons and punitive measures do not seem to get better results. These other reasons can include many issues including significant/subtle learning disabilities, no adult support, poor executive functioning, and emotional issues. This is obviously not a comprehensive list, but you get the idea. Also, a question that is good to ask is “What is the purpose of the activity?” The answer to that question alone can make a big difference in focusing on critical elements of performance for a student that is useful in growing their expert learner potential. This can even be explored with seating and positioning in the classroom. Without control and confidence of one’s physical state, learning becomes the secondary focus. So, homework, in-class work, whatever the work of a student is we need to know what we are working toward universally, know the student individually, and intentionally plan upfront for all the diversity and chaos eager to learn this year!

Let’s find “techy” ways to help students find their own control and stability in a chaotic world.
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The Hyphen

I never quite realized why I chose a career in special education until this spring. Both of my brothers are electrical engineers and I had a math minor in college. Ending up as a special educator certainly was not my intention when I went off to college. I always would joke that I selected a profession that did not require a government clearance.

Recently, I realized that my mother influenced my career. Mom made it a priority in her life to make sure everyone was cared for, that no one was forgotten. She single handedly took care of my dad for twelve years after he had a debilitating stroke. When I would take her to doctor's appointments she would always take time and ask the doctor how they were doing almost immediately after they would ask her how she was doing. I would often just chalk up this behavior as part of her dementia.

But then it hit me. She knew exactly what she was doing by asking the doctors how they were doing. It was not related to dementia at all. At her assisted living facility I would watch her make sure that fellow residents had everything they needed at meals. She would inform nursing staff if she thought a resident needed some attention. She always had a stash of Lifesaver mints to give to residents and employees. She truly cared for everyone and in her own little way worked to make everyone's life just a little better. For 93 years she had been tossing starfish back into the ocean!

Why did I end up in the special education field? I was destined by my upbringing! I was taught to seek out starfish and return them to the ocean. When I was in the classroom I would somehow always get a challenging student or two because 'I could work with their uniqueness '. At the time I would wonder what I did to make my supervisor continually give me challenging caseloads. I know now that my caseload was based on my ability to see the starfish in everyone. We all need to find the starfish and return them one at a time to the ocean.

I am sure my mom taught me a lot of things. It has just taken me 64 years to realize how she modeled and shaped my life and career. Thanks Mom for your patience with your middle child. You threw me back into the ocean many times!

You always hear it is the hyphen or dash that really counts between your birth and death. It represents the accomplishments, both good and bad, in the course of one's life. Mom has quite a distinctive hyphen, oh the stories it could tell!

Rest In Peace, Mom
February 14, 1924 - June 17, 2017

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Julie Kuhn
Jim, this brought me to tears. How beautiful and thank you for sharing this amazing reflection. What a rich life.
Thursday, 13 July 2017 10:42
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She’s Always Been a Procrastinator; Didn’t Get Her Birthmark Until She Was Six


For many of us, procrastination comes naturally. Eventually, if one is a good procrastinator, one will learn to determine safe times to practice our postponing ways. For me, that means when no one else will be affected or offended. For instance, if I can just spot in the deferred task/phone call/research/hand-washing in the sink at the last minute, and I am sure the outcome will not be negatively altered, I will put it off. Many of us can work well and accomplish much when there is not much time left. It’s a gift. And a curse. There is anxiety. Self-reproach. Embarrassment when we are observed.


Here’s an example. Last weekend my husband was irritated because I have not yet renewed my passport, which, he insisted, had to be completed in the 10th year, by my birthday. So, Saturday I needed to get to the post office before it closed to have a photo taken and file the renewal paperwork. I called the P.O. to confirm closing time and learned that my birthdate was not the expiration date, necessarily. Voila—my passport is valid until August. I was so happy. I stacked up my renewal documents and put them back on the shelf. Tom: “Well, you should go ahead and do this, while you are thinking of it. Since you are ready to go.” Me: “No, I’ll do it later. There are a hundred other things I need to do right now. I really wanted to weed my flower beds this morning, and now I can.” His look showed his dismay. 

If you are a good procrastinator, you know that you can bake the complicated cake the night before the party, and if doesn’t come out, you can run to the bakery and buy one. If you put off hemming the pants and the date to wear them arrives, there’s always tape. If you do not go shopping for the wedding gift, you can pick up a gift card on the way to the shower.

The discriminating procrastinator knows the other thing too. Some things demand and deserve our immediate attention, because otherwise there may be a financial penalty. Because we have signed an agreement. Because someone depends on us to take care of things.

If your child, or one you teach, shows symptoms of an illness, you get help, you let someone know. If that child exhibits developmental delays, you initiate due process and take other steps to accommodate their learning needs.

If your child or one you teach is obviously bright and inquisitive, yet he or she struggles to decode spelling words, misspells wildly, puzzles at age-appropriate multi-step directions, you know there is a problem. If you notice a student has an odd way of counting time on an analog clock, holding a pencil, or remembering something you are sure they had learned, think of Dyslexia. First. Please do not put this off. Children do not grow out of reading disabilities, and timely, effective intervention is the key to their catching up.

Talk to the parent. Did the child struggle to learn to tie her shoes?  Did he or she talk/crawl/walk late? Do they seem extremely stressed when the room is too warm, when they are ill or when they are tired?

These seeming dissimilar traits could be connected to the brain differences apparent in individuals with Dyslexia. If what you are seeing really is dyslexia, the worst thing you can do is to wait. If you begin interventions, and it becomes obvious that what this child is experiencing is not dyslexia, then, no harm has been done. All students will benefit from explicit instruction, audio books and other multisensory supports. They may not need those reinforcements to read well, but if a student needs those and they are not provided, they then are set up for present and future failure.

A general overview of issues surrounding dyslexia will help you help your students. Knowing what to look for at each age/grade level is a very good start, and this website, Understood is a great resource to help you decide next steps.

Please do not put this off. There are tiny little faces depending on you to get it done.

Thanks so much!



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A Mighty (Laminated) Sword

A Mighty (Laminated) Sword
A preschool teacher consulted with me about a student who was struggling with behavior; one of most intense issues she’d ever seen. The little girl would bite and punch and roll on the floor, and it was a full-time job just to keep her in the classroom. She also had a severe communication impairment. She talked and you could understand the words, but there wasn’t any meaning behind them. She couldn’t tell you about her favorite movie or answer beyond a simple question. For four years, every adult and child had to guess what she wanted to say.

“We’ve got a lot of things started, a lot of plans,” she explained, rattling off all our favorite behavior acronyms: FBA, BIP, FERB, etc. The one thing she didn’t say: AAC - Alternative and Augmentative Communication. The student had a severe communication impairment; couldn’t that be a big part of why she’s having behavior issues? Did they consider AAC and giving her a voice?

“But she can talk,” the teacher said. “The issue isn’t talking, she just wants control.”

Before I could jump on my soap box, another preschooler yelled with perfect dramatic timing:

I don't wanna tootie!” edged with the desperation of a preschool boy who would probably explode if he had to eat an animal cracker cookie.

“This is what we have,” said the assistant, pointing to the snack menu visual. He screwed up his face. “Do you want anything?”

“My teez.”

“You have cheese in your lunchbox?” He nodded. “Go and get it.”

And life went on. Crisis diverted! Communication saved the day! And wouldn’t you know, he was awfully and age-appropriately controlling. It’s communication that gets us what we want: acceptance, love, and cheese. Adults are known to throw fits when they can’t communicate their order in a drive-thru. Imagine four years of being stuck in the Taco Bell drive-thru and never getting to talk to someone. You’d want to hit someone too.

In another preschool, I got to observe a program where AAC was wrapped around the entire classroom. Brightly colored AAC boards were taped to the walls and hung from the cabinets. Every kid, whether they needed to use it or not, had a core word communication board at their elbow and so did all the adults. I sat down next to one student, and the teacher smirked.

“I don’t know if you want to sit next to him.”

Oh no, I thought, panicking, Did he have pink eye? Was I going to get pink eye?!

“He’s our typical peer.”

This little guy, brand new to preschool and a little wary of everything around him, was talking with the communication board like he’d used it for a month. He didn’t have a communication impairment, and he wasn’t anyone’s idea of a typical AAC user. But we’ve all seen the new preschoolers cry and shut down at their first-ever activities, and he was using an alternative way of communicating and interacting with his brand new environment and classmates. Maybe he only needed it that day, maybe he’ll never want to use AAC again, but he’ll remember feeling safe and included in preschool from the beginning. Communication, in any form, saved the day.

According to their speech-language pathologist, Jenni, including robust and thoughtful AAC has been amazing:

“They know that they give them a voice… We've had so many days that we've just looked at each other and shouted, "Did you see that?", "Did that really just happen?" It's been so fun to watch these kiddos learn... I can't believe how quickly she is learning. She carries her board around with her like it's a mighty sword.”

So teachers, therapists, administrators everywhere, (I can’t believe I’m saying this): all students must have swords*, whatever sword(s) fit them best. Make sure they have their swords everywhere. Make time for sword practice. Seek sword specialists, talk to other sword users. Don't favor one type of sword over another, because it was never about the sword, but the person wielding it.

Expect swords to be mighty and all students have strength to wield them, and they will conquer dragons.

*the sword is communication, all types of communication, for those who still aren't into my ridiculous analogies


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Spring

I grew up in a Belgian neighborhood. Most of my adult neighbors were immigrants or first generation Americans. ‘Broken English’ was the neighborhood language, English was the second language. The Belgians take great pride in the appearance of their household and neighborhood. Lawns were perfectly manicured, weeds were pulled. Neighbors could be seen twice daily sweeping the curbs due to cars kicking stones up onto the sidewalk.

The hobby of choice was racing pigeons. Every Saturday they would take a crate of their best birds to a designated location to have them turned loose early the next morning to see whose pigeon would return back to their respective coop the fastest and give their owners bragging rights.

Annually in spring and fall were two very special events……Spring cleaning and Fall cleaning. They would wait for the perfect string of days so that windows could be opened to air out the house. Over the next few days every inch of the house got a thorough cleaning. Furniture had to be moved and every wall in the house was washed. Carpets were shampooed. Draperies were taken down and cleaned! All the closets were reorganized! Windows were washed inside and out! The neighborhood smelled like Spic n Span! Six months later a repeat performance.

Well it’s spring again. The neighborhood I grew up in is now ‘integrated’ with non-Belgians who don’t have the same work ethic as old timers once did. But something can be said about that work ethic. It sort of provided each household with a clean slate that was refreshed and renewed.

As educators, a good spring cleaning may just be in order. With ESSA (Every Student Succeeds Act) and the Dear Colleague Letter, we as educators are being asked to do a thorough cleaning. But instead of washing walls and shampooing carpets in our classrooms we are being asked to refine out teaching styles by insisting that all students live up to high standards and incorporating UDL principles into everything we do. It is not a simple task. Nor is it a task that can be completed in just a few days. Nevertheless, it is an important task. Generations of students will benefit.


And just like when I was growing up the deep cleaning was an annual event held twice a year, we cannot be complacent with an occasional deep cleaning of our teaching style. It, too, needs to undergo a good cleaning and rejuvenation often. So get out the proverbial ‘Spic n Span’ frequently and transform your classroom into a learning environment where everyone has an opportunity to learn. Our students will be grateful for it.


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Happy Birthday to...Me?

Please wait, I'm thinking
I recently attended a training and the presenter asked us all to introduce ourselves and then share one thing about us that would not be on our résumé. I instantly went into panic mode and could not think of one thing about myself to contribute. Luckily, my colleagues came to the rescue and offered this unique information about me when I was failing. My response was, “One thing that is not on my résumé is that when I am put on the spot to answer a question about myself, I totally forget who I am and what I like.”

For instance, I’ll never forget the time I was in gym class when I was in second grade. It was January 12. To make teams, the PE teacher had us line up and tell him the date of our birthdays. I was third in line, and he wanted this to happen very quickly. When he pointed at me, I said: “January 15.” (My birthday is September 23.)

I was horrified when he responded, “Oh! Your birthday is only a few days away!” He then proceeded to let me pick whatever team I wanted, and I was first in line for everything. Then the worst (but kind) thing happened on January 15...he had the whole class sing “Happy Birthday” to me.

Birthday Balloons


I mention this story as a reminder to give students multiple ways to respond to your requests, alleviating many of the barriers to expression. This will allow students to access themselves. Even if we feel our requested tasks are simple things to ask of our students, we must also make it simple for them to respond.

Being cognizant that some students may struggle with verbal responses for various reasons can be a game changer in getting to know our students and allowing them to open up to their peers. It may not even be a struggle to express; but a matter of their own processing time as we hurriedly skip them or show frustration, translating their actions into defiance.

This coincides with the Universal Design for Learning (UDL) principle of offering multiple means of action and expression. Having a universally designed environment in all areas, all locations, all subjects, all the time within the walls of your schools is essential for equitable education.

Just a few examples to start or continue;

  • Get to know your students. Ask them how they like to respond.

  • Have visuals available for responses.

  • Allow students to write or use speech-to-text (STT) responses.

  • Using backchannels in your classroom are not only a beneficial way to remove the barriers of anxiety of having to verbally respond on the spot; but they are also a good way to expand the classroom outside of school hours. There are many free tools to make that happen.

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Happy New Year!


Out with the old, in with the new. Well, not really. Many people, places and things stay right with us as we make that leap into a new year on the calendar.

Time does fly though… as they say.

I moved to Indiana from Illinois in 2000. My mind calculates that as 17 years ago, however; it sure doesn’t seem that long ago in my heart. One experience of moving and becoming familiar with a new community is worthy of sharing with you today.

Shortly after settling into our neighborhood, it was time to find a church. We visited several and found one that was a good fit for our family of four. It didn’t take long for me to notice a steady stream of spelling errors on our changeable roadside sign. It was usually a simple matter of switching a few letters around. However; I was concerned about the frequency of the errors. I inquired with the church secretary to learn that our sign keeper had dyslexia.

I was intrigued and wanted to meet this sign keeper. 

“John” was a smart young man of 14. He had a big smile and a willing spirit. He was outgoing and confident and had no reservations talking with me. He admitted he was good with numbers and not so good with letters. We quickly became pals and I would help him make his idea for the sign a reality.  This seemed to take away some frustration for him and bring out that smile of accomplishment. I can truly say John was my first friend in my new community! Our friendship grew to a mentoring role for me. I not only met with him to develop his sign weekly for the church, but we would also go over his homework. I enjoyed helping him with his reading and writing and his mother appreciated the extra attention given to her son. We both knew John had the potential to be successful in the working world. With his intellect and dynamite personality, all he needed was a few strategies and techniques in which to assist him in his reading comprehension and implementing thoughts to paper.  

John is now a husband, father and Chemist for Eli Lilly and Company. He doesn't attend my church anymore, but we stay in contact with each other. He still refers to me as "Miss Glenda," and I'm honored to know him and call him my friend.

Some people might wonder whether a change in sign keepers was in order. Our sign keeper may have mixed up a few letters now and then, but he was (and is) the epitome of a willing servant. It is often those with lesser talents or disabilities who prove to be the most diligent and effective in a given situation.

If you’d like to know more about Dyslexia, check out our Lending Library Resources or ask one of our Specialists.     

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Sandy Stabenfeldt
Great post Glenda! Thank you for sharing. This is a wonderful story, just like you!
Monday, 09 January 2017 08:19
Bev Sharritt
Delightful story --everyone needs a Miss Glenda!
Tuesday, 17 January 2017 12:12
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