PATINS Logo
Promoting Achievement through Technology and INstruction for all Students
Apr
05

Wet Poop: An AAC Story

Wet Poop: And AAC Story The future cannot be any brighter for a student when they have a team of adults who are willing to try new things and really listen to the student in all the ways they tell you something.

Content warning: this blog contains toilet humor, bodily function discussion, and the power and potential of every child.

It’s not too early to call, but my favorite story of the semester came from an Augmentative and Alternative Communication (AAC) workshop I did in February. We were learning about all the greatest hits in AAC: modeling without expectation, ways to support literacy and comprehension, and being good communication partners. Someone always has a story to share, that day was:

“One of my students told us with his AAC device he had ‘wet poop!’”

The entire room gasped in appreciation. I love these AAC workshops. It’s phenomenal to be in a room of people who get it. None of us get that warm, enthusiastic reception over dinner at home when we talk about bathroom things.

For those of you who are a little lost, let’s paint the picture, which is an increasingly common one:

This is a student who was introduced to a robust way to communicate this year after years of having very little access, just a few words in a limited way. This is a child who never had a way to make a choice that wasn’t already curated for him by adults who couldn’t possibly anticipate all his wants and needs. This is a child who someone might have described as having a “behavior problem” when he was just using whatever he could in absence of communication access.

“Wet poop” wasn’t a term he’d heard anyone use before. He didn’t know how to find the word “diarrhea” and wasn’t sure how to spell it. Because he knew what was going on with his body and could describe it, he was able to get prompt health care. This is easily one of the biggest concerns parents have in consultations with PATINS.

“When they cry, I don’t know what’s wrong. I don’t know if they’re hurt or sick or sad, they can’t tell me and the doctor doesn’t believe me. I’d give anything for them to just tell me what’s wrong.”

His team knew that despite giving him an excellent robust tool for language there was more to be done. I had the pleasure of sitting down with the team recently to review all the great things they’d done thus far and what to plan for next:

  1. They introduced core and fringe words, and now plan to focus on grammar and syntax to create interesting and meaningful messages
  2. They introduced the alphabet, phonics, and literacy instruction and planned to introduce word prediction to support spelling and communication strategies
  3. They had great visual and language supports for literacy and planned to tweak their presentation to promote engagement.

The future cannot be any brighter for a student when they have a team of adults who are willing to try new things and really listen to the student in all the ways they tell you something.

If you have your own “wet poop” moment, fart sound you want to program into an AAC tool, or need a new idea to try, we’re here to help!

1
  1114 Hits
Jan
05

Book It! For Grown-Ups

Book It! For Grown-Ups Were you part of the generation that grew up learning the value of reading as it related to a personal pan pizza? Me too!

Were you part of the generation that grew up learning the value of reading as it related to a personal pan pizza?

Me too!

Pizza Hut’s Book It! program was a cornerstone of my childhood: read so many books a month, and get a little coupon for a free pizza. In elementary school, I devoured books almost as fast as pizza. Throughout my childhood and teens, I always had a stack of novels nearby.

It didn't change until sometime in my 20s. I couldn’t find any enjoyment in reading books and at the time I couldn't pinpoint why. My free time, interests, and access to books had certainly changed. I had a job, responsibilities, and no weekly trip to the library built into my schedule. I just didn't read books anymore, so I described myself as "not much of a reader."

In actuality I was still a reader, a voracious one even. I was just reading different things for different purposes: cooking and travel blogs, news reports, professional journals, comic strips, and the Wikipedia pages on Basque whaling in the 1700s. I spent hours reading every day but if it wasn’t a book with chapters I believed it didn’t count. That frame of mind was harmful: no one way of reading or type of reading is superior to another. When we put books and novels as superior to other types of reading, we set ourselves up to an unequal and inaccessible standard. And when I took the pressure off of being “a good reader = books = pizza” and could find enjoyment in more types of reading.

So I propose a new Book It, A Grown Up Reading Program. There are a few rules:

All reading counts

Books of any length or genre? Good. Children's books? Good. Not-a-books like blogs, comic strips, technical reports, the news, and recipes? All good. Audio, digital text, print? Good, good, good!

Get the tools to help you read

Today I almost exclusively read digital materials. Audiobooks let me multitask, conserve energy, and prevent repetitive motion injuries while the digital text gives me the learning and organization tools I need. Both of these formats are necessary for me to access reading. I also use two types of headphones for audiobooks: bone conduction and noise canceling. You can borrow these types of headphones from our lending library. If I was a student with an IEP, I would insist all this information be written in that document under assistive technology and accessible educational materials.

Did you notice up at the top right corner of the screen we have a ReachDeck accessibility toolbar? If you haven’t yet, try it out. Listen to this blog or another page with the tool. Do some stretches or pace around a bit and read. Did you like it? Would you or your students use something like that again?

Share the joy

Does every student have access to reading materials in your district at the exact same moment as everyone else? 

Do they all get to have interesting reading experiences about a variety of topics? 

Do they need some tools to be successful readers, as most adults do?

If you need support with the above questions, reach out to us, we have tools and ideas to try!

Finally, buy yourself a pizza

Also, splurge on some breadsticks, because you are a grown-up with grown-up money.

3
  982 Hits
Oct
06

AAC Awareness Month: Back Up and Backup

AAC Awareness Month: Back Up and Backup Augmentative and Alternative Communication tools are like a tangible bit of your student’s soul.

I love working for PATINS. Going into work knowing there’s something I can do to help Indiana’s public PreK-12 staff and the students they serve at no cost to them? Amazing. A true dream job. However, there is one part of this job I really, really hate because it's so preventable.

At the time of this blog publishing, it has been 19 days since the last Least Favorite Thing happened. It hurts my heart, a feeling of mad-sad unlike any other, and it makes the list as my Least Favorite Thing because it’s so easily preventable:

Back up the AAC tools.

Augmentative and Alternative Communication tools are like a precious tangible bit of your student’s soul. These tools have words for family, friends, and favorite things. It’s organized and situated just right, like a perfectly organized office, where things are just the right style and everything is in its right place and no two are exactly the same. Just like the perfect office where all the most important things happen, it might burn to the ground and your student might be left with nothing. It is always heartbreaking when the tool is lost forever, sometimes life-threatening, and always preventable.

Reasons I've heard staff share while fighting back tears and screams of frustration:

  1. An art project resulting in q-tips and jello shoved into the charging port
  2. Dropped device in toilet
  3. “I don’t know, I just looked away for a minute and then suddenly all the buttons are gone!”
  4. Frisbee’d device across the room
  5. Well-meaning IT staff “updating” the device
  6. His sibling used it like a step stool to get to the kitchen counter
  7. App updates corrupted original file
  8. Left on the playground during a rainstorm
  9. “She got mad and deleted the app so she didn’t have to talk to us, but now she’d like it back.”
  10. He ate it

When backing up files, three really simple rules:

1. If it's not set up to be automatic, backup at least 4 times a year if not monthly, especially if you've done a big "vocabulary dump" or settings change.

2. Backups should be shared and shared confidentially with at least 3 people in a way that it could be retrieved in the dead of night in the middle of winter break on the way to the hospital. Google Drive, One Drive, or Drop Box are very popular options, others offer options owned by the software company.

3. Involve your student in the backup process. Talk about who sees the backups and why they're important and how to get to them. Backups, like checking the batteries in your fire alarm, aren't magical mysterious events. Involve your young students early and often and give them the opportunity to learn to advocate and direct how they want their tools, an important part of AAC competency.

Backing Up AAC Files:

These are a sampling of AAC products and directions on how to back up the files. Are you supporting software not on this list or have a tool that’s not software and need some help with backing up and using it? Please reach out to one of our AAC Specialists and we will help!

TouchChat iOS App

Proloquo2Go iOS App

LAMP Words for Life iOS App

Avaz Android and iOS App

TD Snap iOS App 

TD Snap on Windows

Empower (PRC-Saltillo Accent devices)

NuVoice (PRC-Saltillo Accent devices)

NovaChat devices

Speak For Yourself iOS App

0
  1083 Hits
Jul
06

A Stained Glass Starfish

A Stained Glass Starfish Just show up and help make something beautiful. It will matter to at least one.

One of the most surprising things that happened to me last year was learning how to make stained glass art. By chance, I ran across a video of someone making a suncatcher and I immediately fell in love and bought a beginners kit.

It has been pretty easy to draw parallels between two of my favorite topics: stained glass art and accessibility, especially Augmentative and Alternative Communication (AAC).

Learning only takes place when other people are involved.

Being self-taught is a myth. No one on this planet is “self-taught” because learning takes other people and the environments they design. While I have yet to attend a formal class in stained glass, I’ve benefitted from dozens of knowledgeable people. I’ve learned through the thoughtful design of hundreds of experienced teachers through the environment and tools they created for me. Our students are no different: the support we give and the environments we design are the soil, air, and water to their growing minds. No one learns in a vacuum.

I need a lot of tools.

So many tools! Six of them are for breaking glass in slightly different ways. But that makes sense because just like in AAC ecosystems we’re supporting an environment of creativity and communication and we need lots of tools to do it. We can’t teach someone one tool, even a really great tool, and expect it to work for all situations and times.

Good tools don’t make up for good technique.

Breaking glass is very easy, it’s breaking it the way you want it to break is the difficult part. It takes practice and learning and reflection. In the same vein, predictably I will get at least six phone calls this school year complaining that the communication tool they borrowed from the PATINS library didn’t work for a student, and when asked if they modeled on it and how often, the phone goes silent and we begin the conversation about how students do not learn by osmosis and a good tool doesn’t make up for evidence-based techniques. Every single item in our lending library we provide no-cost support and training so you can hone your skills and maximize your student’s success.

Everyone benefits if we design accessibly.

I choose many of my tools because they were designed for “people with arthritis” or “if you have cataracts.” I have neither, but my own disabilities and preferences, the specialized allow me to make things. Without them, I wouldn’t be able even to try! Providing multiple ways to communicate to and with learners also makes sense, even if they don’t “qualify” or aren’t someone you’d suspect would need that tool or technique.

Forget “go big or go home”: show up and do a little. 

I’ve spent most of my adult working life thinking everything had to be in 20-60 minute chunks to “count.” Even when I feel tired and uninterested, I try to spend 5 minutes in my “creative space” even if it’s just cleaning. 5 minutes is perfect to start. Modeling 5 phrases on a device are always better than 0. Spending 5 minutes connecting with a child is always better than none. Not every day can we or our students summit a mountain. Just show up and help make something beautiful. It will matter to at least one.

In honor of that "it matters to this one" mentality, I made a starfish and shared the process. I hope you enjoy it!




Video Description: Jessica Conrad narrates the starfish story while creating a starfish suncatcher. First, she pulls out sheets of blue glass of different colors and textures. Then with a red marker, she writes numbers on each part of a paper pattern of a starfish. Placing a blue-green stained glass sheet on top of the pattern she scores the glass with a glass cutter. Then using running pliers (decorated with googly eyes) she snaps the glass into pieces along the scored line several times breaking it into the desired shape. The pieces are taken to a glass grinder where the edges are smoothed. She then lines the edge of the cut glass with copper foil tape and uses a tiny roller to smooth out the foiled edges. She then lays out all five pieces of her stained-glass starfish onto the table and brushes the coper with flux. With a soldering iron, she applies the solder to the copper and a jump ring to the tip of one of the starfish legs. Finally, the finished star fish spins in the light by a window.

0
  1019 Hits
Apr
07

Who's Afraid of AAC?

Who's Afraid of AAC? When someone says “AAC is not my thing,” what they're really sharing is that they are scared.

Somehow being an Augmentative and Alternative Communication (AAC) specialist with PATINS has put me in the position of listening to the confessions of school staff:

“I’m not good with technology.”

“They didn’t teach any of this when I was in school.”

“AAC is not my thing.”

It’s usually said in a hushed tone when they think no one else is listening.

“I have nothing but good news,” I’ll often say. “90% of what we’re talking about is just good instruction for all students that you already know, we’re just framing it in a new way to support non-speaking students. The rest I’ll put on a cheat sheet, and I find cheat sheets helpful too.”

But what I want to say is “AAC wasn’t my thing either and look at me now!” At one time, out of the things that SLPs had to learn, I would have ranked AAC dead last. Even below the paperwork.

I had “The AAC Class.” In one semester I was to learn everything I needed to know about AAC and I would be set for the rest of my career (haha!). However, there was one little snag: the professor who taught the AAC class took a sabbatical and another staff member was wrangled into covering it so we could graduate on time. This is what I learned that semester:

Nothing.

At least, nothing which was practical or helpful in the real world. I was given my first “real job” caseload with several non-speaking students, a binder for PECS, a Boardmaker CD, and released into the wilderness. My class notes were worthless.

I was in trouble and these students needed something I didn’t have: the knowledge of how to “do the AAC.”

Of course, AAC was definitely not my thing. But it had to be because there was no one else. I adopted a simple plan that has kept me afloat to this day: just keep saying “yes” to every opportunity. Every training and app I could find to practice with, every opportunity to attend or present at conferences and network. None of this came naturally or from a book or college course. Yes, I will pilot it. Yes, I will learn it. Yes, I can teach it. It was just years of chasing ideas and tools for students that made them light up inside when they found their voice. I made mistakes, forgave myself, and tried to learn and do better. Yes, yes, yes.

Exactly none of us started life as “technologically gifted” or imbued with the knowledge of AAC or any technique or educational principles. We all had to start at zero and learn.

When someone says “AAC is not my thing,” I think what they're really sharing is that they are scared.

They are scared of failing. They are embarrassed by the idea of not being enough for the task. They are traumatized and work-worn from so many evaluations and tasks, and worried that their work won’t be enough. 

And you know what every scared person wants?

A friend, a light in the darkness, and some tools.

At PATINS we have lots of those. Did you know that if you are an Indiana public PreK-12 staff member and one of our events on our training calendar isn’t at a time that works for you or your team, you can request it at another time? If you were hoping to talk about that topic but wanted 1:1 personalization or a deep dive into a special topic, we can set up that consultation at no cost to you or your district.

In particular, for those who are ready to say “yes” to trying out AAC tools and techniques, we have a process just for that. For a no-cost PATINS AAC Consultation, please fill out this referral for each student. This 2 minute video is a brief overview of our process.

The scariest thing that could happen is doing nothing.

1
  1447 Hits
Jan
06

Is Your Assistive Technology (Still) Biased?

Is our assistive technology still biased? Image: screenshot of a text message that asks

Over a year ago I shared some thoughts about bias in assistive technology: technology was created by humans, so the technology has biases. Biases hurt humans, but humans have the capacity to fix it.

Not surprisingly, some things have changed since I wrote it! There have been small steps towards a more equitable and representative access for all. In 2020 we hadn’t had a single synthesized voice option for Black Americans, and the first one, Tamira, was developed and released earlier last year which is now an option for many Augmentative and Alternative Communication (AAC) software programs.

Also not surprisingly, we have a long way to go.

When someone mentioned to me that we now could finally have Black AAC users with a representative voice, I had to stop and think for a moment.

It’s a start, but that one voice is one attempt to represent a diverse umbrella of accents in the United States. That voice alone can’t accomplish all that needs to be done to have a "representative voice" for Black American AAC users. For example, when you look closer at the language in most of the robust software for AAC, you notice the bias: you can’t conjugate sentences properly in African American English (AAE). In some software you can say “he is sick” but you can’t say “he be sick” which is a common linguistic feature of many varieties of AAE. The “habitual be” in some AAE and Irish varieties, for example, shows the difference between being sick once or habitually being sick. I can’t conjugate “ain’t” or say “finna.” The word prediction doesn’t predict the correct grammar or vocabulary of AAE.

“Of course not. We don’t want them to sound uneducated.”

Oh yikes. Or as many would say in the Midwest: “ope!”

Prescriptive grammar, the idea there could ever be “the right way” to speak a language, is still a prevalent bias in education and assistive technology. As a speech-language pathologist, there is a lot of harm to children and families by describing a linguistically valid way of communicating as “uneducated” and not representing it properly.

We want all students to be able to sound like their community. There is power in knowing how to communicate in the way your community expects (or to defy the rules, as you choose). To know the very words you say tie you to your family and generations of history is like having a bit of your ancestors in every sentence. We still haven’t created technology that allows that for every person, only some, and that’s a problem.

As perhaps some English speakers could have said 900 years ago:

Englisc meagol witodlic un−l¯æd fâgung (very roughly translated to Old English: English is strong because of its variety).

It’s said that addressing bias is a lot like tending a garden, not winning a race. You put in a lot of sustained effort and you might see a little growth. Sometimes you don’t (yet). When you’ve addressed the bias you notice, give it a few weeks, and then your work and effort will be needed again for something you never noticed before.

It’s the garden worth tending to as we have a lot of human potential to grow.

Resources:

Do You Speak American? from PBS

Contact a PATINS Specialist on how to incorporate your student’s language(s) and dialect(s) into their communication system.

PATINS also has a webinar on "Culturally and Linguistically Representative AAC" that any Indiana PreK-12 stakeholder can request live. Email me to schedule it at a time that works for you.

0
  1667 Hits
Oct
07

the littlest message

infant hand held by an adult hand, the text infant hand held by an adult hand, the text

Sometimes I feel I do little: 

little progress, 

little endless tasks, 

and little accomplished.


Then I remember sometimes I need more little: 

little celebrations,

little breaks,

little reminders of why it’s so important.


Because in this work, we love little:

little differences,

little changes,

for little people who mean everything.


You decided to click on this blog post and make a little room in your day for this message: embrace little, slower, and less in parts of your life. When we love the “little” in our lives, we have space for more of what matters.


My little suggestion today:

Take a little moment and let someone know that showing up and participating in your life today was important. One idea: nominating someone for the PATINS Starfish Award, which has an excellent tradition of celebrating Indiana school employees who have used Universal Design for Learning, Accessible Educational Materials, and assistive technology to meet the needs of their students.

That little memory, after many little moments, will mean more than you can measure.


1
  1206 Hits
Jul
07

Failing the Stranger Test

Failing the Stranger Test: a communication board, and IEP screen, a Speak and Spell Toy, and a red Failing “The Stranger Test” means you’ve failed a student, and that failure can mean, literally, life and death

My first year writing Individual Education Plans (IEPs) an administrator coached me in “The Stranger Test.” I would argue it was one of the hardest ongoing writing assignments I will ever have: everything you ever learned in graduate school, all the jargon and technical language, hide it. Write and communicate in such a way that a stranger on the street would understand what you mean.

It’s important because in practice, failing “The Stranger Test” means you’ve failed a student, and that failure can mean, literally, life and death.

A student I got to work with for a few years had moved across the state. I got a friendly email from the new team asking if I could help them out. When I recognized the student, I asked about the  Augmentative and Alternative Communication (AAC) tools that he had been using at his previous  school.

“He has specific AAC tools? All the IEP says is that he gets ‘high and low tech AAC.’

What in the world could that mean?

  1. A picture of snack choices and an eye gaze controlled computer
  2. An alphabet board and an iPad with any random app.
  3. The cases of DVDs from his video collection and the Speak & Spell from my childhood.

All of those would satisfy the legal document. Yet none would match what this student had been using for years, the only way the team had figured out how to help him communicate what he wanted and gave him access to his education.

Why had the IEP been written in such a way that one of our most vulnerable students potentially lost all of his access to language? The most common answer I hear: “I was told not to name the exact brand/type of device in the Assistive Technology box.”

In the words of the greatest movie of 2003, Pirates of the Caribbean, the unwritten rule about not naming brands is “more what you’d call ‘guidelines’ than actual rules.” Individually, with the case conference committee, consider what the student needs and be clear about the features. In some cases, one and only one specific language system or product may meet that student’s needs and it may need to be named. For other students, several options might be appropriate, and then it’s critical to name the features that make that tool successful for that student, and “high and low technology” is not professional vocabulary for a stranger test.

In other words: the language systems of Proloquo2Go and LAMP Words for Life are not interchangeable for many students. The language system that is only available in iOS is not often interchangeable for whatever language system that can be found on a Chromebook. They might both be “high tech AAC” but for many people it’s like exchanging German for Mandarin. That change move might mean the difference between being able to communicate pain, needs, and accessing education and not. It might mean the difference between life and death.

Of course, we at PATINS have nothing but good news:

If you need help, a friendly stranger for your stranger test, PATINS is here with Specialists to assist you in making sure that you accurately describe the features in the tools your team has trialed. If your student has outgrown those tools and you’re looking for something new, we are here for that too!

Also, I have created a list of common feature terminology used in Augmentative and Alternative Communication tools with descriptions of what they mean, a little study aid for your ongoing Stranger Tests.

The hardest writing assignment of your life, the one in which the futures of children rest in the words you choose, is a living, breathing group assignment. Don’t hesitate to reach out if PATINS can help.


0
  2507 Hits
Apr
08

Employee of the Year

Employee of the Year Cheesy 1990s school photo featuring a cream colored chihuahua looking off in the distance as the misty backdrop set against a neon laser background, with another picture of the same chihuahua in the foreground looking at the camera with

I had a student we’ll call Todd. Todd’s favorite things were the zoo, reading animal books, and quizzing people on their animal knowledge. One of my favorite days working with him started with a very rough morning with a writing assignment.

“It’s a letter to anyone,” his teacher explained. “We’ve been at this all morning and he only has one word written.”

Todd looked crestfallen. After animals, pleasing adults was one of his favorite things. His teacher knew that if Todd hadn’t started something, it wasn’t because he was “stubborn” but he struggled to get started with new tasks and needed another way to approach it.

We went back to my "speech room" and looked at the blank paper. I had lots of tools at my disposal: adapted pencils, keyboards, voice dictation software, wiggle seats, kits and binders of visual supports for writing, and of course I had free access as an Indiana public school employee to the PATINS Lending Library to borrow whatever I thought might help Todd. I thought of my tools, I thought of Todd and what he needed and remembered his special nerd power.

“Do you want to write a letter to a dog?”

Todd nodded, still a little hesitant after an hour of trying to write and nothing coming out.

“You could write to my dog, if you wanted. She would write you back.”

“You have a dog?!”

So I told him about my chihuahua, Winnipeg. Winnie was abandoned on the street in Indianapolis and we adopted her. She loves blankets, snuggles, and sandwiches. I had a hunch she loved reading and writing letters.

Todd immediately scribed five sentences (one of his accommodations, since tools like speech-to-text software were not accessible for him), and put the periods and capitalization in himself:

Dear Winnie,

Don’t eat all the treats. Why are you a little dog? You are a good loving dog. Play tug of war with Mrs. Conrad. Don’t wake your dad Winnie.

Love,

Todd

It may never make it into a library or be critically acclaimed, but it is one of my favorite written works a student has ever produced. I felt like Winnie earned Employee of the Year that day. Relationships paired with the best ways for access wins every time.

Some of our pets have put in more hours and done more service to humanity in general and Indiana students specifically than they’ll ever understand. They’ve been especially treasured and faithful companions this past year, while we spent way more time on “their” home. They are therapeutic little creatures who remind us to enjoy simple pleasures, take care of ourselves, maybe take a nap in the sun sometimes.

If you’d like to see some of our PATINS pets, I created a short quiz. See if you can guess what pet belongs to which staff member!

Todd got his letter from Winnie the next week, and he was rightly suspicious:

“Did she write this by herself?”

“Good question, what do you think?”

“She can’t use a pencil.”

“No, she can’t.”

“But maybe you can scribe, like how you do with me.”

“I think that’s a great idea.”

I'd love to hear about your pet and the little acts of service they do for you, your family, or students!

1
  1727 Hits
Jan
07

Insult and Injury: Toxic Positivity in Schools

Insult and Injury: Toxic Positivity in Schools blue background of smiley emojis with an occasional sad or mad emoji face, black text highlighted in yellow "Insult and Injury: Toxic Positivity in Schools"

Many years ago I sat in a terrible staff meeting. Positions in our school were being removed, a colleague’s illness had taken a turn for the worse, and one of our dear students had lost her father. Everyone was feeling heartbroken and frustrated.

“We just need to put a happy face on it!” the administrator chirped and moved on to bus duty schedule announcements. There was a clear expectation that we weren’t supposed to discuss what was going on and we all needed to “leave the negative at the door for the children.” That was not good advice or developmentally appropriate.

Toxic positivity, that message to “bring good vibes only” has serious negative consequences, both psychologically and on the outcomes in the workplace and classrooms:

  1. Denying or minimizing experiences and feelings leads to mistrust and shame, see Brene Brown’s “Listening to Shame” TED Talk and the lethal effects of shame that are very applicable to a classroom
  2. Suppressing emotions has negative consequences for mental health
  3. Not acknowledging negative emotions prevents you and others from learning from these painful feelings and experiences
  4. It undermines the UDL framework we need to ensure learners (and expert learners) voices are heard

The message to “focus on the positive” and “it could be worse” was silencing our ability to grieve, process, and be empathetic towards each other.

So what do we do instead? Some points that have carried me through tough feelings and interactions:

  1. It’s okay to not feel okay. These “bad feelings” are not inherently “bad,” they are morally neutral and part of the human experience. Feeling this way doesn’t make you a bad educator, family member, or leader.
  2. Listen to other’s emotions and experiences. It’s okay for others to feel sad, angry, or upset when you are not. Unless asked for, it’s probably not a time to offer unsolicited advice and don’t attempt to police their tone.
  3. Set your boundaries and respect the boundaries of others. “I want to vent. Are you in a place to hear me right now?” with your trusted go-to person might be a good way to start. Recognize when others are producing toxic positivity and set boundaries with them.
  4. Seek support. All these hard and big feelings (whether you are feeling them or others are feeling them) can be difficult to manage. Mental health services like Be Well Indiana or your employer’s Employee Assistance Program often have free or reduced-fee services. They can support you and help you find ways to listen and empathize more effectively, find motivation, set boundaries, and return to a happier and healthier state.

As we start a new year, which may be the hardest year some of us have ever lived: all vibes are welcome. PATINS’s support and kindness are here when you need it when providing healthy, sustainable, and respectful access and engagement for all students.

More resources:

Article: Toxic Positivity: The Dark Side of Positive Vibes (and their handy Examples of Non-Toxic and Accepting Statements)

PATINS Blog: Feeling the Burnout

Article: Should You Hide Your Negative Emotions From Children? 

Indiana Resource: Be Well Indiana for mental health resources, crisis hotlines (both for voice and via text), and assistance

1
  2981 Hits
Oct
08

Throw Out Your "Low Tech" Stuff

graph of a positive correlation between AA batteries and potatoes with the title What do we do instead of relying on the imaginary technology spectrum?

My husband and I have an inside joke for measuring things that can’t quite be measured: the potato.

How much do I love you? 12 potato.

How cute is our dog? 9.5 potato.

How much do we hate fireworks after midnight? 14,000 potato.

It’s silly nonsense but easy to use.

A couple of years ago I was talking to a team about a young student who had complex communication needs. They had tried the Picture Exchange Communication System (PECS) but the student wasn’t making much progress. I asked why they had started with PECS.

“We use best practice. First, we start with low tech.”

Exactly zero potato of that is best practice.

How does one progress on this imaginary spectrum of technology? Is it when you perform really well or really badly? Did the number of batteries used in the tool correlate with her skills or her needs?

No one could say, but there was an unwritten rule: something had to be proven before you got something “fancy.”

a graph showing a strong positive correlation between

It’s a hard paradigm to change for all us folks born in the late 1900s (ouch): it’s 2020, there is no such thing as a low-high assistive technology spectrum.

Consider this model I adapted from my old notes on aided AAC and other AT:

Low tech:
Cheap, easy to learn, no batteries, minimal vocabulary

Mid tech:
Moderately expensive, needs some training, more vocabulary

High tech:
Expensive, extensive training needed, relies on touch screens technology or other newer technology, lots of vocabulary

The more you learn, the more the above is proven wrong. A PODD book comes in paper with tons of vocabulary and in my experience requires lots of training, a minimum investment of several hundred dollars. We have a library of very limited and inexpensive communication apps we could teach you to use in 10 minutes or less.

We have apps and extensions that are free or built into any cheap smartphone that can read text aloud, is this “high tech” AT better or worse than the "mid-tech" text scanning pen or the "low tech" sheet overlay? The number of batteries it has will inform you about as well as my potatoes.

What do we do instead of relying on the imaginary technology spectrum?

PATINS Specialists can help you discover several frameworks and assessment tools that help teams keep the focus on what is important: your student receiving an equitable and accessible education. Our no-cost consultation services are always available for our Indiana public PreK-12 schools with a focus on best practice, sound evidence base, and effective ideas. We'll even loan you tools to try from our no-cost Lending Library and be available every step of your student's trial.

When we focus on our student’s needs and the features of the tools, our IEPs and supports become better. We are able to figure out which things our students have outgrown, we are quicker to identify what isn’t working and why. When we use a common language of tool features, our students learn to advocate for themselves more effectively and our conversations with other team members become more productive.

Do not throw out your "low tech" stuff. Throw out the low/high technology spectrum labels and embrace tool features so your students can address the barriers in their world. You’ll be a better professional for it.

I’m 400 potato certain.

1
  3982 Hits
Jul
09

Is Your Assistive Tech Biased?

Is my assistive technology biased? screenshot of text from phone, sender to PATINS:

Five years ago I was excited to sit at a table with a young Black student and her mother to show her all the things her child using a new robust augmentative and alternative communication (AAC) device could do.

She could tell us what she wanted to play with.

She could tell us her favorite color.

When one of her classmates was bothering her, she could tell them “stop.”

She loved it. The school loved it. Mom wasn’t sold.

“It doesn’t sound like her,” she objected.

Both of us knew this student’s mouth sounds were mostly squeals and cries. I opened the settings and showed her the choices: “Ella,” “Heather,” and “Tracy.” We listened to little clips of the computerized voices.

“They don’t sound like her.”

And she was right. There wasn’t a voice that sounded like someone that came from her family or community. Not a single voice that sounded like a young Black person, not on any system I could find. I could program a voice for her talker that sounded just like Yoda from Star Wars right then and there, but a Black American was too far fetched for assistive technology.

Because technology is programmed by people, who all have biases, our assistive technology has biases. And those biases are a danger to the UDL framework we use and in some cases, life threatening.

The speech-to-text software doesn’t work equally across all voices and varieties of English, especially Black voices.

The grammar checker flags non-white varieties of English.

The AAC lacks language from other dialects, cultures, and communities, and if it is there it is labeled as fringe. You want another language? It's available, but no one downloaded the file or attempted a translation.

The visual support makers are absent of vocabulary that is developmentally appropriate for all school aged children, such as words for sexual health, identity, and justice or they are locked behind a wall of “adult only.”

Indiana’s Article 7 Special Education law is explicit on how to figure out if a student can take home their AT:  “On a case-by-case basis, the use of school-purchased assistive technology devices in a student's home or in other settings is required if the student's CCC determines that the student needs access to those devices in order to receive a free appropriate public education” (my emphasis added). 

If your staff refer to a “school policy” or a hoop for families to jump through, such as an after-school training, you’re inviting bias into determining which kids get to talk, read and learn when the school bell rings at the end of the day.

Your word prediction program guesses the words that could follow “He is ___” are: good, smart, and mean, but “She is ___”: crazy, married, and pretty.

As we scrutinize our own biases, inherent tools and instruction we are welcoming into our classrooms and families:

  1. Listen to the people using the technology.
  2. Question your own biases.
  3. Take action. Engage your colleagues in what you’ve learned. Dialogue with the people creating the technology. Good developers are open to constructive criticism from consumers. My word prediction example was immediately discussed and corrected by the company. If they aren’t responsive to your concern about bias within their product, why would you want that in your room?

Our assistive technology has some problems created by humans. Humans can fix it.

Resources and Further Reading

PATINS Lending Library and no-cost training for supporting all students

Critical Practices for Anti-bias Education for K-12 Educators, Teaching Tolerance

Vocabulary for Socially Valued Adult Roles, Institute on Disabilities at Temple University

Ableism, National Conference for Community and Justice

AI is coming to schools, and if we’re not careful, so will its biases, Brookings

Don’t Get It Twisted- Hear My Voice, ASHA Leader

8 Influential Black Women with Disabilities To Follow, Disability Horizons


1
  5288 Hits
Apr
02

The News I Did Not Get

The News I Did Not Get

I have something really important to share.

It affects your health. Your safety. Your ability to access education and justice. It might save your life.

Read it below:

grey square

What’s that? You can’t read it?

If you, your school, your municipality or other community servants are sharing pictures of text, it is not accessible to many of the people who may need it most. Pictures of text cannot be read by a screen reader and readers don’t have the ability to make it large print or high contrast. For people with dyslexia, blindness or low vision, or a poor internet connection that won’t load a picture, they don’t get the same information as everyone else. I lose out on the ability to auto-translate it to my language.

If that information was in a video and not captioned, it’s not accessible for people who are deaf or hard of hearing or cannot have the volume on right at that moment (shout out to all the parents juggling baby naptime and work simultaneously!) Interpreting and translating might be necessary.

If your job is to share information with your community, share it with the whole community.

Reach out to the creator if you see it. Point it out and offer suggestions for what to do differently. They will appreciate the information!

Lives may depend on it.

There are many other things we can all do to make our digital content accessible to everyone. If you need support and ideas for distance learning now, PATINS has curated many excellent resources for continuous learning due to COVID-19. Our specialists are here to support Indiana public PreK-12 schools providing equitable access to all.

We have been the best kind of busy helping Indiana educators find solutions to providing instruction for all students. To the teachers learning to be YouTubers and taking on video conferencing, the porch drop offs of AAC devices and assistive technology, the extra training, professional development, and so many creative solutions for kids: you make us very proud to be working with you. We hope to see you at one of our office hours or at the Tech Expo next week so we can (re)connect and share your struggles and successes!

2
  2698 Hits
Dec
26

Don't Listen to Specialists

Don't Listen to Specialists
This unseasonable warm weather reminded me of when our air conditioner randomly turned on in the middle of last year’s winter. I am no HVAC professional, but even I knew we had a problem, so I did what every self-respecting millennial does:

I Googled it.


Because I didn’t really know what I was searching for, it took forever and didn’t yield results. I called a specialist from our thermostat hotline. The specialist asked for product information and had us perform some activities on our device. Something truly surprising happened:

Specialist: Go outside to your air conditioner condenser.

Me: Okay.

Specialist: Now unplug it.

Me: Okay, it's unplugged. What now?

Specialist: Is it still running?

Me: No.

Specialist: Excellent. Is there anything else we can do for you today?

Me: … Are you serious?!

The surprising part, in case you were wondering, was that I wasn’t speaking to a specialist, despite the title. I was speaking to someone who was prompted by a computer program, absent of any understanding of our house, the root of the problem, or what “problem solved” looked like.

So we called a real specialist, someone with 30+ years in the HVAC industry, who had built trust with us and our community. Several questions and some fancy equipment later, he figured out the root of the problem, explained our options, found us a temporary solution until the permanent one could be implemented, and taught us what to do if it ever happened again. I could have had the same fancy equipment and never figured out a fraction of what he did in 20 minutes, let alone the preventative training. That is what a real specialist does.

A good specialist is someone you listen to, who might have some special equipment and solve a problem well. A great specialist is someone you engage with, who listens to you, discusses big problems and plans for the future, and they make room for you to learn alongside them. They are someone who sits with the table as a "knowledgeable other" on your very knowledgeable team and leaves it better than they found it.

The next time you work with a specialist (or find yourself as the specialist) consider these questions:
  1. How do you gather and use the lived experiences of the student and knowledge of the family and staff who know their roles and the student best?
  2. What do you see as the root of the problem or barrier we identified? (Hint: if they say it’s the student, find another specialist)
  3. How can our team ensure we are on the right track when the specialist isn’t here? How do we reach additional help if we need it next week? In a year? In 10 years?
  4. When was the last time you had professional development in this area? What did you learn? How does it apply here?
  5. How can we identify goals for our student and team?
So I repeat: don’t listen to specialists. Leverage good specialists by fully engaging with them and communicating your high expectations for all your students. Really great ones are worth walking alongside, having one very long and inspiring conversation over the course of your entire career.

PATINS has a list of specialists ready to engage with you, as well as a process just for students who struggle to communicate and may benefit from Augmentative and Alternative Communication. We look forward to the conversation!
2
  2431 Hits
Aug
08

Stop Teaching "Low Functioning" Students

Stop teaching the low students Magic Ball indicating High. A witch's hat with speech bubble reading,
I half-joke that I’m working my way out of education purgatory, trying to make up for my sins in years past. One particular mistake I made: I let myself believe I could help “low functioning students.” The year I refused to teach “low” kids (and “high functioning” students too!) I started to realize what my purpose was.

I worked in a school that had two self-contained special education classrooms. On paper, it was just Ms. A’s class and Ms. Z’s class, but everyone referred to it as the “high functioning room” and the “low functioning room.” Sometimes the students had instruction together or joined their peers in general education but, in general, the students of the low functioning group stayed in their room and the high functioning students had more chances to be included. The high functioning students sat with assistants and learned letters and numbers and the low functioning students watched the other students work. Maybe we’d stick a switch toy on their wheelchair tray. Yipee.

Why? Because it was The Way We Had Always Done It. You’ll be happy to hear it’s changed.

On the flip side, I had students who were “high functioning.” Teachers were very pleased to have high functioning students except when they didn’t do what the other kids were able to do, or in the same way. Every year, like an unspoken agreement, accommodations were slowly chipped away. “He’s high functioning,” we’d all say. “He doesn’t need a sensory break, or note taking support, or Augmentative Communication. He should be able to do that on his own by now, or else he’d be low functioning.”

“The difference between high-functioning autism and low-functioning is that high-functioning means your deficits are ignored, and low-functioning means your assets are ignored.” - Laura Tisoncik

Once I was asked to observe “Cory.” Cory was a youngster who enjoyed trampolines, letters, and car commercials. He needed constant supervision, plenty of breaks, and explicit directions and support for academics, leisure, and daily living skills. He frequently hit the person nearest him, although staff could not pinpoint as to why (no FBA completed). He had no way to independently communicate. It wasn’t that they hadn’t tried but what they had tried wasn’t working, so they stopped. He did have two little symbols taped to his workstation: “more” and “stop” that were used to direct his behavior.

His teacher met me at the door and gestured to where he was “working” (10+ minutes of redirection to sit in a chair with some math problems attempted in between). I asked what would be helpful to her as a result of our consultation.

“As you can see, we’ve tried everything,” she exclaimed, gesturing to her lone visual taped to the desk. “He’s just too low.”

It took me a while to pick apart why this particular visit weighed on my soul. I had been that person and I knew the ugly truth: as soon as we start saying students are “low” we’ve haven’t described the child, we’ve described our own limitations in believing in kids.

The terms “low functioning” and “high functioning” are not professional terms. They have no place in an educational report, school policy, or conversation. They are born from poor understanding, frustration, and/or a misplaced desire to categorize students by how high our expectations should be. Who gets to be high functioning? Who gets to be low? Did you mistakenly think (as I did) that researchers set an agreed-upon standard or that there was a test or some type of metric to determine what bin of functioning we all belong in? Perhaps there was a Harry Potter-esque Sorting Hat of Functioning?

"...‘high functioning autism’ is an inaccurate clinical descriptor when based solely on intelligence quotient demarcations and this term should be abandoned in research and clinical practice." (Alvares et al, 2019)

In absence of a Magic 8 Ball of Functioning, I challenge you to stop teaching “low functioning students,” erase the phrase from your vocabulary, and start wondering “what do we need to be successful?” Describe the supports your student needs, the skills they are working on, the behaviors and interests you’ve observed. What do you need to do differently? Tell me about your student, not the expectations people have formed. At PATINS we have not met, in our entire combined careers, students who were too anything to learn. There is always a way, and we can help.

What ever happened to Cory? I haven’t heard back from his team since then. It still makes me sad, because I know that as long as one of the most meaningful adults in his life thinks of him as “too low,” not much will change.

You will not regret ditching those words. Your students will remember you for it. You have nothing to lose but functioning labels.

They weren’t helping anyone, anyway.
2
  6270 Hits
Jun
13

I "Sparked Joy" In My Office and It Worked

I "Sparked Joy" In My Office and It Worked I
I don’t pretend to be any better than the kids who love to watch hours of people unboxing toys they’ll never play with: I love watching people buy homes I’ll never live in, make food I’ll never eat, or declutter spaces I’ll never visit.

To that end, I really adore Marie Kondo, the enthusiastic and sensitive soul who encourages you to either “spark joy” with items or don’t keep them, among other steps in her decluttering process. My husband is terrified when I turn on one of the episodes on Netflix, because he knows I'll be inspired to tackle another room. ?

I admit to being a packrat and wishful crafter, especially in my job. When I see corrugated plastic yard signs or empty takeout I bring up the “Pinterest of my mind” and imagine what I could turn it into. Having a shoestring budget to cover 3-7 different rooms every year meant I had to be creative and I thought if I could just find more there would be… more! What if I needed it later?

A few years ago, unaware of Ms. Kondo’s methods, I inherited a workspace that resembled what an avalanche in a tiny library might look like. Materials were slowly suffocating me, and I realized The Purge must happen. I created a little test in my head: was this going to positively impact a student this month? Yes, keep and organize, if not, pitch. That's it, the only rule!

What was donated?
  • 60% of the games and books
  • Outdated testing materials
  • Old triplicate IEP forms from 1997
  • 99% of my college books and projects
  • 90% of the worksheets
  • Treasure box toys (and any references to treasure box/incentives)Neatly organized office supplies and a cup of coffee
  • Assistive Technology that has really truly bit the dust or past its useful life (check with your schools on how to dispose of it properly)
What stayed?
  • Solidly constructed organization tools like shelves and file drawers
  • Perennial office supplies, although not so many
  • A set of what I still consider my “speech therapy on a deserted island” emergency kit: mirror, dry erase board, post its, pens, crayons, tongue depressors
I can report I’ve never missed anything that was donated, not once.

It was better than a facelift: I felt like I had energy! The room wasn’t so busy, I could put things away quickly and my students could get things out. We were moving and grooving to a new rhythm.

At this stage in my career, the 5-7 speech rooms have condensed into the trunk of my car. It’s still a battle of making sure what’s in there really sparks joy and moves the needle. I’m moving offices again, wish me luck in making sure what stays in my new workspace provides me purpose and energy for another year!



2
  2561 Hits
Mar
07

Feeling the Burnout

Feeling the Burnout Burnt toast with the words
How is it that Fall Semester has 90 school days but Spring Semester has somewhere around 1,200? It feels like it doesn't it? While some of us are anticipating a much-deserved break, you or your colleagues might be struggling with that-which-we-do-not-really-talk-about: burnout.

I cried every day of the first two weeks in my first post-graduation job. No hyperbole: I went through my entire tissue box in my car and I knew exactly what spot to park in so the cafeteria staff couldn’t see my tears. I'm grateful to report that it got better. My first experience with burnout wasn't my last, but each time has taught me to be more patient and gentle with myself and others.


Still, it sucked.

My first job out of graduate school, I was excited but pragmatic. I wasn’t planning on changing the world, I just wanted to be a good speech-language pathologist. I wanted to help my students meet their goals, I wanted to turn in all my paperwork on time, to feel good about the work I did with kids, and have a real life outside of work.

When I woke up I felt I had enough energy and resources to pick two of those things and let the other two slide. I was miserable. I privately wondered if I was burnt out already, only a few months in.

I wasn’t burnt all the way, but the edges were pretty rough, a little toasty if you will, and it was obvious in the day-to-day. I was physically sick more than I’d ever been. I was short with people that didn’t deserve it. Every little ask or additional work felt like I was being personally singled out. Didn’t anyone care?!

The truth is, in education, we care and we are surrounded by people who care. We care so much, all day long, without ceasing, and the unpaid emotional work comes at a cost. In many cases, especially for those of us who work with students who have experienced trauma, it can come on acutely with compassion fatigue or slowly with burnout.

The Life Stress Test is one tool to help gauge how susceptible you are to stress-related illness. Notice that happy things, like marriages and vacations, contribute to stress just like deaths and job changes. Just before I started my (tear soaked) first two weeks:

Got married (50 points)
Had a change in financial status (38 points)
A student loan over $30,000 (31 points)
Change to a different line of work (36 points)
Finished School (26 points)

The month before I started school racked up enough "stress points" to put me firmly into a category of moderate concern, let alone everything else weighing on me up to that point. With all the “happiest time of your life” cards I’d gotten, it seemed wrong to be feeling stressed and upset. Looking back, I wish someone had said that I could be really happy to be married and employed and really unhealthily stressed at the same time, just to relieve some of the guilt.

It's interesting to note that most of these "stress tests" are very adult-oriented. What would it look like for many of our students? I imagine:

Walked into school late (15 points)
Unexpected substitute teacher (22 points)
High-stakes test (40 points)
Surprise convocation (13 points)
Something bad happened at home but the adults won't explain it to me (20-60 points)

Life has since changed for the better because I made changes. I surrounded myself with wonderful, positive people who listened and taught me how to manage my work. I said “no” to some things so I can say “yes” to self-care. I created new schedules. I learned new paperwork management techniques. I applied UDL principles in my work for my students and for myself. I had fun! PATINS had a wonderful twitter chat about mindfulness on Tuesday, many shared tools and ideas I want to try. Take a look at this calendar from Montgomery Co Public Schools around self-care (thanks for sharing @PossBeth). Try a few in the upcoming week, see how you feel!

While most of the things on this list helped me overcome my temporary bout with high-stress and burnout, sometimes we need more assistance and help to find that help. The correlation between burnout and depression is strong and, for many, these techniques aren't enough. Before I stepped foot in a classroom I was given training on the ways my students could access more mental health services and support but it took years before I learned about help for me and my fellow educators, such as:

Seek a professional. Many employers offer Employee Assistance Programs or other opportunities to take advantage of free or nearly free counseling services.

Suicide prevention hotline, 1-800-273-8255, with accessible services for people who are Deaf or Hard of Hearing and in Spanish.

Consider getting trained in responding to someone who is in crisis. Many districts offer training in Question, Persuade, Respond program or other crisis response techniques to empower all people to intervene and prevent suicide.

My hope is that you know you're not alone. My deepest wish is that when you reach out for help PATINS can help you feel less "toasty-to-burned out" as you manage new expectations and challenges, you'll find an enthusiastic colleague and listening ear.

We're rooting for you!
2
  4094 Hits
Nov
29

This Blog Post is Full of Curse Words

This Blog Post is Full Of Curse Words Icon for various forms of AAC with the large black font reading
About once a month I have to answer a really important question:

“Why is that word on his talker?”

“That word,” is our euphemism for any number of words: body parts (slang and clinical), fart sounds, curse words, words that are culturally irrelevant, childish, or inappropriate for a child [of his age/place where he is/supposed cognitive level]. And someone, somewhere, decided to program it on this child’s Augmentative and Alternative Communication (AAC) device as if encouraging the child to use inappropriate language.

I get it. When I imagined the magical moment of helping a student find her voice with the fancy new Sound Generating Device, I wasn’t expecting her first two-word phrase on her device to be “poop butt” repeated over and over again for the next three days, either.

I get it, I really do! We’re professionals trying to create engaging and enriching environments for our learners and the literacy activity has been derailed because we taught him how to make plurals on his talker and now he loves pluralizing the word “as.”

We admit we’re impressed, but we can’t let that slide.

In moments of “enriched language” that flusters me I take a deep breath and remember:

I am not the language police.

A larger-than-anticipated part of my job has been talking about cuss words. And promoting cuss words. And explaining the functional importance of having access to cuss words. And listening to and programming cuss words into communication devices. And explaining why adults can't delete cuss words and "adult vocabulary" from a kid's voice. And listing all culturally relevant cuss words. And finding good visuals for cuss words.

If my professors could see me now.

So what happens if she talks out of turn, pressing the buttons on her communication app? The same thing that happens to all the other students talking out, of course.

What happens when she won’t stop saying “poop butt”? The same thing you would do for any other child who says it. We don’t duct tape kids mouths, and we don’t take talkers away.

What happens when she uses swear words in class? The same thing that you do for any other student who cusses in class. We can’t forcibly remove words from a speaking child’s vocabulary. We teach, we consider the variables, and we provide natural consequences. We don’t delete words from the communication device.

It is work worth doing, with clear expectations, communication between school and family (and sometimes with the office door closed and the volume down really low as you check to make sure “#$!@” is pronounced correctly). The communication device is a voice, not a school textbook or a representation of just the words you hope or anticipate they’ll use today. It’s their access to their human right to communicate, and sometimes communication is colorful, shocking, or uncomfortable.

Do you agree or disagree with me? Let me know in the comments below, with any language you like.*

*natural consequences apply

The icon AAC in my title image is from ARASAAC, a no-cost Creative Commons license resource for symbols and icons to represent all words (even “those words”).
1
  4615 Hits
Aug
23

Labels, Learning Styles and Stars

"Labels, Learning Styles and Stars" on a starry background
How would you label yourself as a learner? Take a moment to think about some words you’d use.

Did you use your astrology sign? No?

When I was in high school my career counselor helped me pick a major. I took some tests which yielded lists of potential careers. Every week I studied them and shrugged.

During our last session, he sighed and said, “let’s check your horoscope.”

We pulled up a list of suggested careers for Geminis and laid my career assessment list next to it. One career showed up on both lists: speech-language pathologist. I never knew that was a thing, but I said I’d try it and I haven’t changed my mind since.

However, I do not recommend the Jessica Conrad Horoscope Method for choosing careers or to better understand your student’s possibilities. There is zero science or rationale behind it. I could have just as easily been an antique dealer. I hate The Antique Roadshow.

Also worth noting: it turns out I’m not a Gemini. This whole time, I’ve been a Taurus.

When the news broke at NASA that the astrological charts were out of whack for various reasons, I was shocked. Go ahead and look at the new suggested dates. If your sign changed, do you feel a pang of denial or disbelief, even if you use it for entertainment? I did. It’s hard to let go of that label.

Humans like labels. We are programmed to like knowing who are “our people” and who isn’t, what we are and what we aren’t. It helps us feel safe, helps us feel like we understand things, whether it’s true or not.

Go back to my first question, how you would label yourself as a learner. Did you use any of these terms:

Visual learner
Auditory learner
Kinesthetic learner

Or something like that? Several years after I picked my career from an astrology website, I was sitting in a class where the lecturer announced in passing “there’s no such thing as a learning style.”

I felt my foundation of identity rock a little when I heard that. Learning styles aren’t real? “Say’s who?” I wondered because I knew that I was a visual learner. I took a little learning quiz once and my teachers reaffirmed it and I felt it deep in my bones. Give me a book over a lecture any day. I was great at understanding graphs. Didn’t that mean anything?

A little digging revealed decades of research reaffirming the truth: our brains are amazing and complex and cannot be categorized with the decades-old hypothesis that I am wired to learn one way and others another. We still have a lot to discover about brains and learning, but the learning styles myth doesn’t hold any water or make any difference in instruction. You can read this analysis for post-college learning, and this meta-analysis summary from Indiana Wesleyan University and the research article published this year from Indiana University. You can also listen to Tesia Marshik’s Ted Talk on learning styles and the importance of critical self-reflection.

It’s hard to adopt that new information in the face of what we feel is correct. Our brains are wired to identify it as a threat, seeing information that opposes our strongly held belief no different than a lion trying to eat us. It’s hard but important! Why bother writing this and debunking the myth? Besides promoting evidence-based practice, bad information hurts kids.

For example, a young me who saw the list of careers like “engineer” and “concert vocalist” under different learning styles and thought they were out of reach. My high school student refusing to give geometry another try because “I’m just not a visual learner.” The guidance counselor who advised my friend to not pursue nursing because there was so much reading and not enough kinesthetic learning for her.

There’s a lot of other labels and titles we throw around:

Stubborn. Sensitive. Flighty. Rude. High-functioning. Low-functioning. Special. Gifted. Delayed. Aggressive. Picky. Not Diploma Track Ready.

All labels we’ve seen passed around a conference table helping us make very big decisions about what that student’s future of learning might be.

I challenge you to pause and wonder, what if the label isn't true?

So all of this begs the question: if not learning styles, then what? How do we ensure we are reaching all students? PATINS Project highly recommends Universal Design for Learning and the research behind it. We’ve got great resources and specialists who can assist you in designing for all learners in mind.
2
  3143 Hits
May
18

Nerd

Nerd
My father once lightheartedly referred to me as a “geek” when I was eleven. I burst out crying in shame. Through my tears, I was able to defend myself:

“I’m not a geek. I’m an imaginative nerd!”

And I am.

The Merriam-Webster still defines nerds as "an unstylish, unattractive, or socially inept person; especially one slavishly devoted to intellectual or academic pursuits."

Ouch. I'd challenge anyone to see the positive and powerful side of that definition.


I’ve watched every episode of Star Trek that’s ever aired. Even the cartoon series. I attempted for a week to live and cook as if in the 1880’s (not any other decade, I researched). I love computer games, paper crafts, tabletop gaming, and the construction and design of roller coasters. I tried to code my own breed of digital dog to live on my computer before my parents relented and got us a real dog. My dad will list this as one of his proudest moments as a parent, although my digital frankendog only had a body and a strange floppy nose. There was not a single person in most of my childhood that liked anything that I liked, so I learned the life lesson of needing to a) expand my interests if I wanted to keep friends or b) be an ambassador of my favorite things. Thanks to my nerdiness, I have made a career out of it: have you and I talked about how AAC can change a child's life? Many of you have nerded with me about language and access!


I haven’t always wanted to be a nerd. Teenage years were rough, and there were some awkward moments, even as a self-assured adult, when colleagues would voice grievances such as:

“He’s fourteen years old, he needs to gain interests in age-appropriate things. No one’s going to want to talk about Disney princesses when he’s an adult!”

I was silent and embarrassed, because, well…

collage of Jessica with Sleeping Beauty, Jessica and Adam dressed as Mickey and Minnie Mouse, Jessica in Minnie Mouse costume with the Beast, Cinderella's Castle with fireworks, Jessica and Adam with Tinkerbelle





If this student lived at my house, that’s all we would talk about! My husband and I make annual pilgrimages to the Cinderella’s castle. We make costumes. We watch Disney movies at least once a week. We’ve rated our favorite princesses and villains and dare you to try to beat us at Disney Scene-It.


Why? Because we’re nerds! We love it; it’s fun. It’s also powerful.

Whenever I felt a little burnt out in my job, I just infused a little of my nerdiness into it and I felt renewed. Dressing like Batman or decorating with Star Wars or making a Pokemon literacy activity: they were talismans in my work and the source of my power to get through a tough day. If I could find the source of my student’s superpower, it was like striking oil. I still have tubs of Thomas the Tank Engine and Indianapolis Colts and country music star, Travis Tritt (that one was hard), materials. They were my magic wands of engagement.

In my old school internship journal, I have about 50 pages of me angsting over one student, “Mike.” To sum up those 50 pages: Mike hates coming to speech therapy and ignores me, head on the table. He doesn’t make any progress. I think he hates me.

One day his teacher mentioned he was making imaginary phone calls to someone named Gary, and the puzzle pieces clicked in my mind. I had found his talisman, the kryptonite to my engagement problem: SpongeBob.

Therapy took a detour to the pineapple under the sea and we were in business. Armed with his nerd power and friends, SpongeBob and Gary the Snail, we were conquering phrases with multiple words! Adjectives! Appropriate turn taking! The entire day (and my opinion about staying in the schools after graduation) had turned around.

Our superpowers come from places unseen: the love of our family, our memories of exceptional experiences or talents, a cartoon that makes us feel happy. In these last few days of school, I hope you don’t lose sight of where your superpower comes from and how you’ve used them for good for so many around you. Wave that nerd flag high.

5
  4018 Hits
Feb
09

Hands Off That Kid!

adult hand holding child's hand with text reading
“Sally can solve addition equations with 100% accuracy when the teacher tells her what the answer is.”

If you read that on your child’s progress report, you might do a spit take, right? For one, Sally didn’t “solve” squat. Why is telling her the answer a measure of Sally’s progress? It’s nonsense! Unacceptable! The lowest of lows in pedagogy!

However, plenty of progress reports have gone out this year with some variation of the following:

“Aiden can request preferred activities from a choice of three objects with maximum physical (hand over hand) assistance.”

How in the world did Aiden request something if staff were the ones grabbing Aiden’s hand and pointing? I ask teams working with students why they are using hand over hand instead of any other number of solutions, and they tend to answer with a combination of the following:

“He has such involved motor issues, he can’t touch it unless we do hand over hand.”

“She won’t pay attention unless we do.”

“He won’t do it otherwise.”

You know what is interesting about those objections? They are about us, the adult, and not about our students. Our students with complex bodies need alternative ways of pointing, not hand over hand. Our students with poor attention need engaging and motivating environments, not hand over hand. If your students won’t do without hand over hand, you doing it for them is not a data point. Our students need to learn, and we simply cannot hand over hand their brains.white text on black background

When we decide not to grab student’s hands, we are making a statement of trust and respect to our students. We model. We wait. We think about our materials, change them so they are accessible. We do any number of things because we are saying:

I will wait. I will not force you to perform at my speed.

I will watch. I will adjust and adapt to be a good teacher and communication partner for you.

I will discover with you. Everyone is engaged by something, and we can never know what you know unless you are engaged, first. We will find those things that work for you.

I will reflect. The data we take will be meaningful and help drive decision making, so you can communicate whatever you want to say, or show what you know.

What are you saying to your students today?

5
  4209 Hits
Nov
01

The Voice in the Drawer

Red brick background with
Raise your hand if this has happened you.

Actually, don't, because you're probably reading this silently and you'll look silly if you do.

You walk into a classroom or community visit and find your student who uses an Alternative or Augmentative Communication (AAC) system or device doesn’t have it with them. It’s in a cubbie or backpack or drawer. Waiting. Uncharged. In pristine condition. The cellophane might still be on it.

I think if that piece AAC could talk, it would take you by the hand, give you great big puppy eyes and say mornfully, “I was designed to give your student a voice but I’m treated like an expensive paperweight.”

Did anyone care?

My greatest joy of working in education is that we work with people with hearts seven times bigger than the average person. We all care about students, well past our obligated 180 days of contractual caring. We care about their feelings, wants, and needs. We care about them being able to talk.

The issue in this particular situation isn’t usually lack of caring or empathy, it’s a perceived lack of resources. AKA, “It’s just one more thing to remember.” We can empathize with feeling overwhelmed, but not accept that voices are left in drawers.

Here are 5 of my favorite tried-and-true ways to ensure the voice is out of the drawer and in the hands of the students who need it:

1. Do a task analysis of the student’s schedule. Take a look at each period or station of the day and find examples of when teachers and students would use communication. Communication should happen in the bathroom, at math, and in the pool, just like for non-AAC users. Find ways to make those opportunities to communicate accessible through modeling, rich and thoughtful intervention, and access to evidence-based language representation. In other words: there’s no reason why words aren’t available and modeled all day, every day!

2. Provide some supports. Outline in painters tape where the device is supposed to go on a desk to remind staff if that square is empty. Set placemats and inexpensive device holders in key places around the room. Get the student strap or hands-free harness. Get a portable battery pack. Human-made problems (voice in a drawer) have human-made solutions, you just need to find it (or find someone to help you find it).

3. Low Tech with High Utility. Light tech is an easy and cheap way to make sure everyone has access to language. Tape light tech core word boards to key areas like centers, play area, vocational stations, and the bathroom. Give staff miniature core boards on their lanyards or communication supports on their key rings. Wear aprons or core word shirts. Temporary tattoos. Bonus: Hardcore permanent tattoos. Don’t believe your mom, an AAC tattoo is timeless and will look fantastic in your 80s!

4. Come to an understanding: sometimes we need to pause as a staff and deepen our knowledge about AAC best practices. We offer some great services and professional development. Perhaps you didn’t even know what PATINS offers for AAC. Send us an email, we’d love to chat about you’re wanting to do at your school.

5. Last but not least: Does your staff understand WHY we want to design 500+ opportunities to communicate a day? This is my favorite video that captures my why: that our students need words, many words, and words all the time. What is your why? Does your staff know their why?

AAC isn’t another thing to do. It’s the thing we do. We are all responsible for developing communication skills in our students, it’s the bedrock of learning, connection and being human. It is the best work we will ever do, and it does not belong in a drawer.

5
  5453 Hits
Jul
19

Death By Paperwork

Death By Paperwork
First: I made it out alive. You will too.

This year I messed something up in my back, and by April it was hard to sit for more than twenty minutes at a time. Every drive, conference or meeting I was engaged for a bit and then the rest of the day was spent imitating your favorite wiggly child, trying to ease the pain. I felt terrible.

Sometimes it got better, and then it got worse. I complained. I ignored it. I tried what I knew to fix it, I asked friends for ideas. Nothing really worked.

I had enough and went to a specialist, definitely not something I was looking forward to. I hate going to the doctor. But within a few sessions, my life had changed.

It was like getting glasses in the correct prescription or wearing good shoes after years of wearing Old Navy flip flops. I didn’t know how bad it was until I experienced how my spine was meant to be.

About three years into my career I had another issue that was a major pain: paperwork.

Paperwork is like back pain. Everyone gets some, some people get more than they can handle. It comes when it’s least convenient and it will not go away if you ignore it. By the end of my third-year the IEPs, evaluations, and caseload documents piled up to my ears. It was affecting my ability to do my job and my family life. I felt terrible. If death by paperwork was a thing, it felt imminent.

I complained. I ignored it. I tried what I knew to fix it, I asked friends for ideas. Nothing really worked.

An administrator gently suggested I see some “specialists.” I did not want to admit that I was struggling to anyone, but after meeting with others who were amazing at keeping on top of it all, they gave me some ideas. They pointed out some of my mistakes, the weight that was causing the paperwork pain, and they helped me develop my paperwork treatment plan.

In less than two months, I started to feel better. My files were in order and I felt in control. By the next year, I was rocking a weekly paperwork schedule and found tools to help me streamline and automate. I was spending even more time working with kids than I was before! It was career changing. I didn’t know how good it could be.

You, dear reader, might be dealing with some pain in your career. Maybe it’s paperwork or a student on your mind who you don’t know how to reach. Maybe it’s a new tool or expectation that’s pain in your neck, and doing your job effectively seems out of reach. Maybe you complained or ignored it. You tried what you knew to fix it, you asked friends for ideas. Nothing may have worked.

If it’s related to supporting student’s access to education, we’ve got a team of specialists here to help.

It might just change your life.


0
  9926 Hits
Apr
06

A Mighty (Laminated) Sword

A Mighty (Laminated) Sword
A preschool teacher consulted with me about a student who was struggling with behavior; one of most intense issues she’d ever seen. The little girl would bite and punch and roll on the floor, and it was a full-time job just to keep her in the classroom. She also had a severe communication impairment. She talked and you could understand the words, but there wasn’t any meaning behind them. She couldn’t tell you about her favorite movie or answer beyond a simple question. For four years, every adult and child had to guess what she wanted to say.

“We’ve got a lot of things started, a lot of plans,” she explained, rattling off all our favorite behavior acronyms: FBA, BIP, FERB, etc. The one thing she didn’t say: AAC - Alternative and Augmentative Communication. The student had a severe communication impairment; couldn’t that be a big part of why she’s having behavior issues? Did they consider AAC and giving her a voice?

“But she can talk,” the teacher said. “The issue isn’t talking, she just wants control.”

Before I could jump on my soap box, another preschooler yelled with perfect dramatic timing:

I don't wanna tootie!” edged with the desperation of a preschool boy who would probably explode if he had to eat an animal cracker cookie.

“This is what we have,” said the assistant, pointing to the snack menu visual. He screwed up his face. “Do you want anything?”

“My teez.”

“You have cheese in your lunchbox?” He nodded. “Go and get it.”

And life went on. Crisis diverted! Communication saved the day! And wouldn’t you know, he was awfully and age-appropriately controlling. It’s communication that gets us what we want: acceptance, love, and cheese. Adults are known to throw fits when they can’t communicate their order in a drive-thru. Imagine four years of being stuck in the Taco Bell drive-thru and never getting to talk to someone. You’d want to hit someone too.

In another preschool, I got to observe a program where AAC was wrapped around the entire classroom. Brightly colored AAC boards were taped to the walls and hung from the cabinets. Every kid, whether they needed to use it or not, had a core word communication board at their elbow and so did all the adults. I sat down next to one student, and the teacher smirked.

“I don’t know if you want to sit next to him.”

Oh no, I thought, panicking, Did he have pink eye? Was I going to get pink eye?!

“He’s our typical peer.”

This little guy, brand new to preschool and a little wary of everything around him, was talking with the communication board like he’d used it for a month. He didn’t have a communication impairment, and he wasn’t anyone’s idea of a typical AAC user. But we’ve all seen the new preschoolers cry and shut down at their first-ever activities, and he was using an alternative way of communicating and interacting with his brand new environment and classmates. Maybe he only needed it that day, maybe he’ll never want to use AAC again, but he’ll remember feeling safe and included in preschool from the beginning. Communication, in any form, saved the day.

According to their speech-language pathologist, Jenni, including robust and thoughtful AAC has been amazing:

“They know that they give them a voice… We've had so many days that we've just looked at each other and shouted, "Did you see that?", "Did that really just happen?" It's been so fun to watch these kiddos learn... I can't believe how quickly she is learning. She carries her board around with her like it's a mighty sword.”

So teachers, therapists, administrators everywhere, (I can’t believe I’m saying this): all students must have swords*, whatever sword(s) fit them best. Make sure they have their swords everywhere. Make time for sword practice. Seek sword specialists, talk to other sword users. Don't favor one type of sword over another, because it was never about the sword, but the person wielding it.

Expect swords to be mighty and all students have strength to wield them, and they will conquer dragons.

*the sword is communication, all types of communication, for those who still aren't into my ridiculous analogies


0
  4403 Hits
Dec
15

Redhead & Lizard Seek Magic Bus

Redhead & Lizard Seek Magic Bus

It’s one of most universal pieces of employment advice:
don’t dress for the job you have, dress for the job you want.


So, of course, I occasionally dress up as superheros. I own several superhero costumes: Superman, Batman, Pajama Day Girl (I made her up, she’s awesome on weekends). I have a super hero costume in the trunk of my car, nestled alongside my first aid kit, in case of emergencies. Maybe you won’t be surprised to know I’ve used my Batman mask more than those bandaids.Jessica dressed and posing as superman with a red tutu

Sometimes I dress up as my favorite superhero in broad daylight, at case conferences and staff meetings: the field-trip taking, magic bus driving teacher who introduced generations to physics, anthropology, ecology, and more. That redheaded wonder woman took eight students and the class chameleon to places near and far in search of knowledge. She also has the best motto:

“Take chances! Make mistakes! Get MESSY!”

What is not to love about Ms. Frizzle? I adored the books and TV show. She was amazing, I wanted to be in her class AND be her.
Jessica holding her cellphone taking a selfie in a mirror wearing a blue dress with cartoon rocketships
It begs the question: why not aspire to be Ms. Frizzle? We have the career in education, we have the vision for fantastic learning. I have several science themed dresses for any occasion, and the lizard, at least the only lizard I could be expected to keep alive. What are we missing?

The magical bus.

The magical bus of my dreams would fly around the state and help teachers in their classrooms. Any teacher, therapist, or administrator could board-- for free-- and try tools so all their students have access to an education. They pose questions like “do you have something that lets my student access her iPad if she can’t touch it?” or “can I turn my paper worksheet into text and then have that text read aloud?” and we would say “Yes we do, and we will show you how to use it too!”

Our magical bus would always be accessible. Not just physically, but digitally. We could instantly connect to administrators and therapists and teachers for training and exploration wherever they are. Or in their PJs, maybe on Tuesday nights at 8:30 EST.

We design to remove the barriers for all our students so they can take authentic chances and learn from their mistakes and get messy. We share tricks and tips from educators who have been there. We would celebrate them, cheer their successes and research and problem solve the roadblocks.

We would bring our volcano drawings to life and explore and explode brains. We would help teams create opportunities for communication where none may have existed. We would go where no educators had gone before. Students who never thought they were "smart" would find tools that would change their minds. We would change lives.

I would submit my request for a magical bus, but I know what the answer will be:

Jessica, thank you (again) for your request for a magical bus. We wanted to remind you that not only do we not have any magical buses, everything that you are asking to do with said bus, we already do at PATINS. Please stop asking.

So while we are not Ms. Frizzle (although we can try!), we do have quite a bit of friendly magic at our fingertips whenever we need it.


0
  3819 Hits
Sep
08

Good Educators are Experts, Great Ones are Rookies

Good Educators are Experts, Great Ones are Rookies
Do you remember your first year in education? I think on it often lately because I just started with PATINS, my rookie year*. Looking back, my letter to myself on that first day after college would be something like this:

Dear Jessica,
You can still cry every day during the first two weeks of school and it won’t be a reflection of your skill, value, or how much you will love your job. Be gentle on yourself, everyone starts here.
p.s. Stop buying everything in the Target dollar section.

My first year I introduced iPads to my students. One little girl wanted to know how to share her beautiful “I Love Mommy” themed cookie she made on an app and send it to mom. I told her I didn’t know, so she told me I wasn’t good at my job and her mother enrolled her in another school. I never touched another iPad again.

Haha, just kidding! Kids don’t care if we are rookies (being rookies themselves) and I learned to embrace my rookie-ness. We played on the app a little and decided to snap a picture of it on my phone and email it. Later I learned I could have done a screenshot, but I didn’t know that yet, this was all brand new to me. Multiply that moment by hundreds or thousands and you’ll see a typical educator’s year. Not a semester will go by that we aren’t handed something new: new policy, new responsibilities, new kids, and new chances to be true rookies in something we have never tried. Which new challenges makes us decide to suit up? Which ones do we avoid and sit on the bench, and how will that impact our students?

Andi Stevenson talks about how important it is we embrace being terrible at something new, from her own experience as executive director and rookie ballroom dancer. Rookies, she explains, turn off internal criticism and don’t fall prey to perfectionism. They are supremely empathetic towards others on their own learning curves. Being a rookie stretches mental muscles, making us approach the new and the difficult in different ways.

Sounds like an awesome educator or administrator, doesn’t it? We call those people expert learners, and these are the skills that make successful students.

Andi also speaks to something that has probably haunted all of us at one point: burn out. Being a rookie gives you the opportunity to discover what makes you happy, and that the happiness can’t come from just one source. Staff who pigeonhole themselves into one area, personally or professionally, are staff who don’t stay long in the field. I struggled with major burnout my third year, so I started some rookie tasks in my personal life. I had a milestone birthday this summer, and leading up to that day I had a list of things I wanted to accomplish, a bucket list of sorts. There were about 25 things, including:

Bake bread from scratch
Vacation somewhere new in each cardinal direction
Learn how to repair my car
Go back to school
Host Thanksgiving dinner

Some of these things I still do, some not, and some activities I eventually purchased technology to assist me.

You can watch me complete the very last thing on my list, the day before my birthday: basic carpentry. This is the beginning of my budding role as a carpenter. I'm not bad carpenter, or just a woman just playing around with some power tools, but a real carpenter. Just like our students are readers, writers, artists, and citizens. We're all just rookies right now, and given the right tools and instructions, we'll blossom.



My favorite part about education (and PATINS in particular) is that we are big fans of rookies. We have to be rookies every school year in something. Welcome to the team!  PATINS and ICAM have the coaches, the training, and the equipment to help you and ALL your students be rookies of the year. You might say we’re your number one fans.

What rookie adventure are you starting this year? How will you model your rookie mentality to your staff or students?

*warning: overuse of sports cliches
2
  3731 Hits

Copyright © 2015- PATINS Project
To Top